What Do You Need to Know About Traumatic Brain Injuries?
Video taken from the channel: AskTheLawyers™
MCL Tear “Sports Injuries”
Video taken from the channel: SportsMD
WORST NBA Injury EVER? Doctor Explains Shaun Livingston Injury
Video taken from the channel: Brian Sutterer MD
Common Traumatic Knee Injuries: Oh My Aching Knee
Video taken from the channel: University of California Television (UCTV)
Evaluation and Treatment of Syndesmotic Injuries in the Athlete
Video taken from the channel: University of Colorado Anschutz Medical Campus
I was misdiagnosed [CC]
![I was misdiagnosed [CC]](https://i.ytimg.com/vi/xzBynfWHUMY/hqdefault.jpg "I was misdiagnosed [CC]")
Video taken from the channel: Jessica Kellgren-Fozard
Easily Missed Musculoskeletal Injuries
Video taken from the channel: James Kinkaid
Commonly Missed or Misdiagnosed Sports Injuries 1. Concussion. A severe impact or blow to the head can result in a jarring of the brain that has both short-term and 2. Achilles Tendon Rupture. The Achilles tendon is a large and vulnerably situated tendon.
It joins the two calf muscles 3.Common Misdiagnoses and Sports Injuries Leg cramps at night a classic sign: The symptom of having leg muscle cramps, particularly at night, is a classic sign of undiagnosed diabetes. However, there are also various other causes. See causes of leg cramps or misdiagnosis of diabetes.Injuries can be purely ligamentous (also known as high ankle sprains) or more commonly associated with fractures of the tibia or fibula.
25 Proper and timely management is important because these injuries may result in substantial missed time from athletic activity, they may potentially require surgical stabilization, and they are associated with long-term ankle dysfunction. 26 Physicians must distinguish syndesmotic injury.Fibromyalgia is one of the most commonly misdiagnosed ailments, primarily due to its symptoms mimicking other afflictions more well-known to medical professionals. It’s commonly mistaken as a form of arthritis, due to its association with nerve and joint pain.Syndesmosis Injuries typically occur in impact sports.
They are missed in about 20% of cases, as x-rays findings are often subtle or absent. The mechanism, physical exam findings, such as the Hopkin’s Test, and associated injuries are important to understand to.Feb. 3, 2000 (Lake Worth, Fla.) Most commonly found in runners who stop short after running at full sprint, or after a fall on the knee which pushes the tibia, the front leg bone, into the.A misdiagnosis case may involve a wrong diagnosis, a missed diagnosis, a delayed diagnosis, or a failure to recognize complications that change or aggravate an existing condition.
Sometimes a doctor diagnoses one condition correctly but misdiagnoses another condition or fails to realize that there is a second diagnosis that needs to be made.We found a wide spread distribution of missed injuries and delayed diagnoses incidence rates (1.3% to 39%). Approximately 15 to 22.3% of patients with missed injuries had clinically significant missed injuries.
Furthermore, we observed a decrease of missed pelvic and hip injuries.What happens when a physician misdiagnoses a serious accident injury? Can a misdiagnosis negatively affect a workers’ compensation claim?
It is a common problem and it is estimated that upwards of 15%-20% of patients are misdiagnosed by physicians. Misdiagnosis is something that affects over 20 million people per year in the United States. In the context of a workers’ compensation claim, it.Diagnostic errors affect 12 million adults in the United States each year.
Knowing which conditions are most commonly misdiagnosed and what their.Lisfranc injuries are easy to miss because they are very uncommon and because the x-ray findings are often subtle or even absent on standard views. Low velocity injuries are typically more commonly missed than high velocity ones. It’s these subtle, low velocity injuries that we should be on the look out for.Again, these fractures have been commonly misdiagnosed as ankle sprains.
2, 9, 15, 16 In one case series, 15 17 of 20 patients with fractures were misdiagnosed with.Stroke was the most common vascular event, while sepsis or blood infection was the most common infection prone to a misdiagnosis. The most commonly misdiagnosed cancer, according to the data, was lung cancer. More than 70 percent of the diagnostic errors occurred in out-patient centers.
Misdiagnosis of Sports injury Undiagnosed: Sports injury. Approximately 90 percent of sports-related TBIs are mild and may go unreported, thus leading to the underestimate of the actual incidence rate of sports-related TBI.This injury is commonly misdiagnosed as arthritis or ankle fracture. Syndesmotic injuries: Syndesmotic injuries involve the ligamentous structure running from the distal fibula and the tibia near the ankle joint.
It is commonly misdiagnosed as a stable high ankle sprain.
List of related literature:
|
|
| from Return to Play in Football: An Evidence-based Approach |
|
|
|
| from Encyclopedia of Sports Medicine |
|
|
|
| from Sports Injuries: Prevention, Diagnosis, Treatment and Rehabilitation |
|
|
|
| from Essentials of Youth Fitness |
|
|
|
| from Issues in Discovery, Experimental, and Laboratory Medicine: 2011 Edition |
|
|
|
| from Sports Rehabilitation and Injury Prevention |
|
|
|
| from The Sports Medicine Physician |
|
|
|
| from Maternal Child Nursing Care in Canada E-Book |
|
|
|
| from School Nursing: A Comprehensive Text |
|
|
|
| from The Occupational Ergonomics Handbook |
96 comments
Uhhhhh I’ve been here for like 30 seconds and I LOVE YOU?! I relate to the shitty doctors…. It took me 2.5 years to get my doctor to send me to a specialist for my chronic headaches and migraine and nobody gave a fuck about the fact that it was ruining my university academics.
Why so fast? What is her purpose of this lecture? She wants just to finish her slides? Bad lecturer!!!!
Me to doctor.
I have ringworm.
DOC “What makes you think you have ringworm”
Me. I have a raised ring on my leg.
DOC its not a worm
ME NO ITS RINGWORM A FUNGUS
I know you probably don’t look at these comments this far out. But I have EDS and wear hearing aids for congenital nerve deafness, low tone deafness. Is this related to EDS? I notice you don’t have deaf speech, so I am guessing your hearing issues are similar to mine. I also read lips.
Serious stuff aside, (but still very important) you deserve a trampoline. Like, a special trampoline for those with disabilities (with no exposed springs or hard edges, because, ouch.) bc you deserve that experience after everything you’ve been through with doctors <3
My younger brother was misdiagnosed back in the early ‘80s, the doctors were convinced he had a thing called Friedrich’s Ataxia, which according to them wasn’t treatable, when in fact he had MS which was easily treatable, or at least controllable, at his age, by the time he was correctly diagnosed the MS had progressed to such a stage that he ended up confined to a bed with almost no muscular control, my father never forgave the doctors who misdiagnosed my brother.
I have Reynaudes and I can assure you that the fingers don’t just go white or yellow…following that they go blue, purple and then black under the nails…….maybe that’s in more severe cases tho�� really good video!
I’m lucky my doctor listens to what I say, at least the one I’ve had for the last 7 years. I suffered from gout flare ups every 3 or 4 months my old doctor just said take ibuprofen and lose wieght (he was bigger than me). This doctor actually gave me a list of possible triggers. I have only had 5 flare ups since.
Me: gives them a laundry list of related symptoms
Doctor: prescribes antibiotics and painkillers
Me:
oh god this is so relatable like. as a kid i was always injured or sick but it took YEARS for us to put the pieces together like. instead we viewed each new symptom (terrible digestion, migraines, hives, scholiosis) as a separate issue and never brought them all together. my mom tried a handful of times to ask a doctor if these things were related and the answer was always “it’s just bad luck.” sigh b
I’ve been drawing since I could pick things up and I drew so much that by freshman year my arm would turn blue and have these odd pinching pains that I couldn’t quite describe and my school nurse told me I probably have Carpal Tunnel so I told my mom and she never bothered following up with it and said it was impossible bc I was only 14
Wow wait so when did he forget about himself/his family? At what point was he not able to speak or advocate for himself? Please tell me he at least Almost died due to lack of control; cause this seems like an easy breezy injury compared to the long term devastation soccer players and football players dealing with repeated head trauma face.
What an acutely horrific circumstance. Not in the realm of worst unless were being specific. In the age of ignored/downplayed head trauma; clickbait like this needs to be called out
I went to my doctor because I couldn’t hear and she said I had no ear infection so I’m fine. I’m hard of hearing: possibly since childhood, and wear hearing aids, and it’s getting worse.
I went to hospital got diagnosis of depression which is wrong. My problem is actually dissociation (and some other stuff) and one doctor said so but wouldn’t diagnose and another wouldn’t let me share experience and discuss because I “have no trauma”.
I had fatigue, anxiety, and vertigo. My doctor said i’m dehydrated and depressed but my mom’s naturopath found out I have iron deficiency and once I started taking it all symptoms except vertigo went away.
I have had chronic pain and headaches for 4 years and my doctor ignores it when mentioned. The chiropractor found out I have a bone spur and mild scholiosis
It took 3 doctors over 4 years to find out I have floating patellas (kneecap)
When I was in elementary a doctor said I had chronic bronchitis (my dad does as well) but wouldn’t put it on my record, moved and a new doctor said that didn’t exist so It must be mild asthma they can do nothing about, another doctor swears it’s allergies but it is not. Basically every once in a while i’m high on cough syrup or allergy medicine.
and yet I don’t have a proper diagnosis of anything, take any proper medicine, or have examples for prevention/treatment
I got so lucky and found a wonderful doctor/pcp who realizes I hate attention and tests and just want to feel better. She has never so much as downplayed my feelings and always listens to me. So many people have dismissed my personal experiences with my own body and told me how I feel based on nothing, so she is just wonderful
You may have already heard about thisbut I’ve got a breathing disorder so i need a machine at night, etetc tldr: If you want to try and secure your jaw during the night there are chinstraps you can get for like…$4 if you look at places for cpap machine accessories/supplies? <3
Like sorry imagine my prediagnosed diabetic self strolled into my gp and said “excuse me I think I have diabetes please can you refer me to the hospital” and they just said “Nah it’s incurable” like what is the mindset behind that???
So we just going to brush over Paul George’s foot injury, as not the worst one ever?!? Mans bone was exposed on live tv and I watched that game as it happen or Kevin ware? What about him
Hi Jessica. Have you talked to anyone about joint splint? They hold joints in place and prevent them from dislocating. If you can get the cool silver ones you’ll look like a cyberborg 50’s housewife.:)
Jessica talks about her wife just like Ned from The Try Guys talks about his wife Ariel����
I do the thumb thing and the finger bending thing just to freak ppl out:)
play chess.
sorry bro, thats an athletes risk. there is no way to improve or protect you from that.
By the way, ACL and MCL are like herpes. Did you know that even chess players can get herpes but not ACL or MCL?
3:31 Wait is it not normally to be able to bend your fingers like that??
I am on social security in the USAletting you know this because I really would like to support your channel but can’t afford it bed and wheelchair bound cannot stand. Cannot work because if I work I will lose benefits that I need to survive. Love your channel ❤️
Looking through all the comments, apparently a lot of people are being told their issues are because “you’re a woman” and I’m just thinking… isn’t that the definition of female hysteria? Since when did that become a legitimate diagnosis again?
i am a pediatric physical therapist since 1990. did you ever get physiotherapy???? i have treated several kids with EDS and other low tone/ floppy/ gets hurt easily/ falls down all the time diagnoses…. i want to go back in time and try to help you!!! there are still exercises you can do as an adult to help….
I had the totally same injury. I have a allogreft PCL, ACL which from my hemstring, fixed MCL, and Fixed Medial meniscus from 2 different places and lateral meniscuss(2-3 mm gap). I had a 6 hours operation and ı’m at my 10. week post-op. And ı was looking for hope. ı mean ”Can ı continue basketball,can ı workout heavy again” and ı cant find a hope actually. Please recomment me sir. What is your opinions about that injury? My knee can repair like before the injury?:(
In the US we pay a ton of money to still get doctors like the bad doctor you describe. I’ve only had a good doctor once, and she moved out of my insurance network. My friend had a doctor tell her she was having seizures because her husband wasn’t paying enough attention to her. I agree with you that your government should give more money and resources to your NHS, but there will probably still be bad doctors. Also, that’s a note to anyone in Britain who thinks complete privitization would solve everything (which I know you didn’t suggest, but I talked to someone in Britain who did.) All it does is make even the subpar treatment unaffordable.
For ten years I had horrible symptoms related to my cycle. I would vomit, be unable to stand, have fevers and would often pass out due to the pain I was in. As a teenager I was put through the gauntlet of tests only to be told I was constipated and to take laxatives. It was so bad I could only work part time. Doctors need to learn to listen nothing I was telling them were normal issues related to a monthly cycle. I was told cramps were a part of life and to take ibuprofen to feel better when I would be on the floor wanting to die. I finally found a doctor who listened to me and found out I have endometriosis. I had an implant put in and thankfully have had a major reduction in my symptoms.
THANK YOU FOR THIS! My family and I have been thinking I am autistic for a while now. I told my therapist and she was supportive. But suddenly, she switched her opinion. No she is asking all these questions that make it seem like I have some other kind of problem (not that stuff like autism or adhd, ect are bad).
You’re a beautiful person and I’m sorry you’ve had to endure so much.
I have 2 conditions, one is called Complex Regional Pain Syndrome in my left arm and means I am in constant chronic pain. I have been in constant pain tha past month and my GP didn’t want to do anything with out the say so from my pain specialist. I kept telling her I was super tired cause I couldn’t sleep properly due to the pain. She told me to just “keep practicing sleep hygiene”. Ah how am I meant to sleep when I am in so much pain that I don’t fall asleep until 4am? I finally have now been given pain relief that I can have during the winter months when ny pain is the worst. During the warmer times I will need to come off the meds.
I was also diagnosed as having Autistic Spectrum disorder. I was 27 years old. I always believed that something was not right but not sure why. The reason for the long wait was due to everyone assuming my signs was due to my father being sick and than passing away when I was 11. I always get the the comments “you don’t look autistic” or “are you sure you have the right diagnosis, maybe you should get a second opinion”. I now have a wonderful service dog/assistance dog who helps me cope whenever I am out and about.
I was told I was faking my pregnancy 11 years ago. I guess my ten year old is a figment of my imagination.
I went in for chronic migraines that cause me to pass out. I got told it was psychosomatic and I should see a psychiatrist. Like thanks for that, but um why am I passing out.
I was misdiagnosed once, dunno what was the diagnosis bc I was 14 and my memory isn’t the best tbh
Turned out I had bronchitis and the medication for the misdiagnosis could have affected me really negatively, thankfully I went to a different doctor and he correctly diagnosed me
The funny part is that this doctor was the same doctor that told my mother everything was okay once she had mastitis while I was a baby; her breast was swollen, bright red, really hot and I was vomiting:/
Doctors amirite
IDK why I watch these, I just end up cringing and holding my knee the whole time.
What if she was like surprise I’m fine lmao that would be awesome.
I’m a high school wrestler and I tore my MCL and ACL and I had 3 surgerys and Rehab for 2 months..It hurt like hell
Someone just referred me to your channel…
I was diagnosed with EDS when I was 12 yrs old, when I was 23 I was diagnosed with Scoliosis & when I was 38 I was diagnosed with MS…I truly understand all the doctoring…
It wasn’t until I was throwing up in the er, that they finally decided to give me an ultrasound. I had cysts on my ovaries.
Jessica, I empathize! I was officially diagnosed with hEDS this year (at 47!). I have many comorbidities, such as IBS, migraines, and fibromyalgia, as well as multiple medication hypersensitivities. I have so many diagnoses, and medication issues, and surgeries, that I have a typewritten form which I give to allproviders, as well as family and I carry one in my wallet. I completely understand how frustrating it is to be pulled and tugged around the medical system, never getting quite the right answer. I suspected for about 10 years that I had hEDS, but was told that it can only be diagnosed through genetic testing, which I certainly couldn’t afford. However, last year I joined an EDS support group on FB and learned about a specialist a neurologist who was opening his own practice too help people like us. And he has it, too!! It securely brings a sense of relief to finally be HEARD and SUPPORTED by a medical provider! I’m glad you have an answer:) By the way, look ing ring splints. Lots of EDS folk use them.
!!!!!!CAN SOMEONE WHO HAS INSTAGRAM PLEASE PASS THIS COMMENT ON TO JESSICA.!!!!!
Have you had thyroid testing? The eye brow thing is exactly what can happen with Hashimoto thyroiditis, which I have on top of my EDS, I know you’ve had extensive blood work in the past but you can develop thyroiditis at anytime, and because you’re thin (as I also am) your current doctors may not test since you don’t have unexplained weight gain, my dr only tested me because he assumed I would be hyperthyroid, surprise I’m HYPOthyroid, would be worth asking your current doc about.
Lol i respect anyone in the medical field but bro i cant watch! Its super cringe! My knees hurt!
“Oh. It’s either PCOS or a thyroid problem. Here’s birth control, which is proven to make your PCOS worse. Oh? That made it worse? Try a different one also proven to make it worse.”
My MALE doctor actually listened and treated me. Now I’m all good with no signs of cysts.
My female doctor really fucked me over. Doctors either suck or they don’t.
I have suspected EDS and had a similar thing with my GP about referral to a rheumatologist. I went in specifically to get a referral so he asked some questions and prodded me a bit with a conclusion that yes, I do present a strong case (and at that appointment it sounded like I would be referred but its been months now) He kept apologetically saying there’s not anything you can do about it but I wasn’t asking for treatment, I just want a diagnosis one way or another and treating symptoms is a lot easier when they know where it’s coming from.
Have you covered this injury yet? I can’t believe he recovered from this and is such a good running back in the NFL now. https://www.youtube.com/watch?v=VWN3FL0bdzc
Ive had anemia most of my life and it’s always been written off as hormonal or something I was doing wrong. I can barely breathe sometimes but of course im just unfit, of course theres not a problem with my blood cells! They would never diagnose me until I finally broke down because my periods were impossible to cope with (6 months of bleeding is Totally Normal Right?!) Yeah uh, doctors Suck
i was told i had bipolar and anxiety for several years until someone FINALLY found a bacteria eating my joints and causing rheumatoid arthritis and a genetic disorder, and now i have to deal with the fact that if one man hadn’t decided i was bipolar (undiagnosed later) it might not have been too late to kill the bacteria before it caused RA. thank u for making this video because we get misdiagnosed all the time!
When I tore my ACL the swelling didn’t get bad until the next day. The sound was like a branch snapping. Great Video
i recently got diagnosed with Heds too. only took 10 years and 5mins with a nurse practitioner to accomplish.
I was told I was throwing up and my periods stopped because I was fatit was because I had a gigantic cyst in my ovary that didn’t even get diagnosed until I changed GPs who actually referred me to a gynaecologist. Doctors can ignore you telling them your symptoms or write it off as something else.
you are SUCH a sweetie. i’m so happy i found your channel. wishing the best for both you and your amazing wife ^^
My life:
Healthcare professional: On a scale of 1-10, how severe is your symptom?
My answer: 10.
Healthcare professional: Are you sure you don’t seem ill?
If you don’t want to believe me, why ask!!
Whaatt my eyebrows fell out too except about 1cm on the inside never heard of that with anyone else
Glad you finally got your diagnosis! In the first 5 minutes I had a hunch that you did in fact have EDS, because that was one of the possible “culprits” for my own health issues before I was diagnosed with (severe) narcolepsy type 1.
My symptoms onset at around 7 or 8 years old, and the past 15+ years got increasingly worse; I’m American, and the private doctor my family had access to sounds like the NHS doctor that brushed you off. Lyme Disease, EDS, Diabetes, Rheumatoid arthritis, Celiacdespite not having even half the symptoms for those things, I was tested repeatedly for all until I begged my doctor for a sleep study. Even the sleep specialist initially told me that he thought I was in the wrong place until he saw my brain wave readings from the tests… but I digress.
Being able to “cure” something is not the be-all, end-all of treatment. Knowing you have EDS allows you to get and make accommodations for yourself so you don’t have to be in pain constantly. Knowing I have Narcolepsy allows me access to medication that tricks my body into sleeping appropriately, so I don’t pass out all the time. If someone has Juvenile Diabetes, we don’t say, “there’s no cure, so what’s the point in addressing it?” I swear, some doctors are the least compassionate people I’ve ever had to meet. So happy you now have your answer!
I suffer from Addisons Disease here in the States. Just like you, it took ages for a Dr. to put the symptoms together and refer me to the correct Specialist to get a dx. Happy you have found some success in getting a correct dx and help.
I was always told I was just a difficult child when in reality I was in near constant sensory overload and shutdown due to unmanaged autistic traits. No doctor or psychologist would diagnose me even with my mum telling them she knew I was autistic due to her being a teacher with a major in education of special needs children. Which led to me having severe Generalised Anxiety Disorder as well. The sensory overload would often send me into panic and crying to the point where I felt I might die. So I end up exhausted both mentally and physically for days after and find it very difficult to function as an adult in society but I’m still told I don’t look or act like other autistic people a certain person has met. Little do they know they’re only seeing me at my best. It’s frustrating not being taken seriously or being given help when you yourself know something is wrong. I wasn’t diagnosed until I was twenty one. I’m twenty four now.
We literally learn about Ehlers-Danlos syndrome in med school. The fact that the doctors you saw didn’t correctly diagnose it makes me sad. I’m sorry this happened to you.
I’m at 3 years still undiagnosed. The healthcare system here in the US is not good either. I wish someone could figure out what I have. I hate not being able to be a good mom
That doctor is sadly just one out of the many medical professionals that were not given adequate training on connective tissue disorders / chronic pain syndromes like EDS. Howeer, he should never have been so dismissive of your symptoms, nor should he have refused to refer you onto a specialist!!! Absolutely fuming to hear this:( me and my mother both suffer from chronic pain and chronic migraines due to EDS and although it is a struggle, it is absolutely something that you can learn to manage if you take the right steps and seek the right kind of treatment xxx
Love that I found you! I have been trying to get my daughter properly diagnosed. She has similar fitures as you, even facial ones, and also hipermobile joints, arm spand is large and other stuff. We also found a good doctor privately and are going next week. Best luck to you!
I started watching your videos just two days ago and when you were talking about your symptoms I more or less knew you had EDS right away, mostly bc I do too and I know the symptoms pretty well. Now a couple of videos later I’m glad to see that you indeed already found this out and are getting adequate treatment for it. It took me 25years to get my diagnosis and I’ve been accused of faking and being dramatic my entire life as well. I hate that you have to go through this but it is comforting not being alone in the struggle. And fun fact, I was the one who suggested EDS to my GP after innumerable appointments and she reacted the same way when I wanted a referral..
General Practicioners amirite? I’ve had scary similar experiences and I’m in the US. But my insurance sucks so yay capitalism.
Obviously whats going on with me is not the same things going on in this video but I have a bunch of unexplained symptoms and my doctors didnt want to listen to me for I think over a decade now. I was finally now able to switch doctors and all of the sudden they’re saying oh btw you might have a seizure disorder and fibromyalgia and all these other things and oh heres an inhaler and here go get tested for cancer and lymphoma and like I’m so happy that I’m finally getting help but my doctor ruined my life because I didnt get the right care and I haven’t been able to function because of it and I was literally bullied by adults because they thought I was faking it. All because my doctor didn’t just listen to me.
The medical system is no bueno for people who have anything other than like 10 things that people have heard of. I mean they go through so much education I feel like that’s willfull ignorance at that point.
Sorry for the negativity it’s just nice to know I’m not crazy like my old doctor and teachers etc have been treating me and that I’m not alone in that.
i find it very useful. it is of high standard and comprehensive.thanks.
9:23 Translation: Anti-RNP antibodies (attack) (a specific part) of a (thing we found floating in the cell nucleus) named (RNA protein from the cell nucleus).
Oh… oh no. I can do both of the hand things you demonstrated “most people can’t do”. I am now quite concerned.
9:05 “you have something, I just don’t know what” is the entire history of my mom’s health. She has chronic illnesses up the wazoo and we still barely know anything because nobody seems to care + we can’t afford to keep digging and getting new doctors. (I’m from America, if you hadn’t guessed.) It’s really frustrating and she’s of course been accused of faking at every turn.
Thank you for your informative videos and uplifting demeanor. I know its hard to smile sometimes when you’re feeling crummy. I have chronic leg pain that my doctor just seems to blow off as “you’re too young for that kind of problem”. Srsly? So???
So story time! I’m an American that used to live in Australia. I cannot remember ever living without aches and pain, for zero reason. Just considered it normal. Thought everyone felt that way. In Australia, the doctors were all like, ya constant pain… Not really normal. They tested me for a bunch of stuff, but couldn’t explain it, so they sent me to a rheumatologist (all hail universal health care baby!) who decided it was a combo of hypermobility disorder (heeey! Go team! I haven’t run into many other HM folks!) And fibromyalgia, which started up a fun little road of people constantly thinking I’m making this shit up (Joy.), or its just the catch all diagnosis you get when they don’t know what is going on, or my personal favorite.. go work out more. That’ll fix it. Because physical exercise is exactly what you want to do when you’re in pain. ��
Gets even better. Moved back to the US, and now
even with an official diagnosisI’m apparently faking it because it’s “not real” and those seven different medical professionals that all had to agree to give the diagnosis must have all been lying. Oh ya, that will be a zillion dollars if you want any kind of pain relief for your fake conditions because here in America, we only take care of people whose company provides them with insurance. What’s that? You’re self employed?Hahahahahahahahahahahahahahahahahahahahahahahahahahajajajajajaja
Good one.
My mom had a friend who died of a rare form of cancer, which i’m pretty sure was the result of Celiac Disease. The problem is, no one knew what it was then (it wouldn’t become a formal diagnosis until two years after she died). She was misdiagnosed with Chron’s disease, and a host of other chronic illnesses (and told that she should eat dry toast whenever she had flare-ups—even though she got extremely ill whenever she ate toast). Whenever she saw a new doctor, he would just roll his eyes, and tell her that it is physically impossible to have Chron’s Disease, osteoclasts, diabetes, and a rare form of cancer at the same time, and that she’s either faking it, or mentally ill. Occasionally, he would run some tests, and say “oh, nm. I guess you do have all these things. Huh, weird. I still don’t know what’s wrong with you, though.” And that was the doctors. The people whose job it is to research, diagnose, and treat things that are wrong with peoples’ bodies. As you can imagine, people with no medical training whatsoever were also quick to draw their own uninformed conclusions.
I was just thinking about her the other day, and about how everyone’s skepticism over whether or not she was really sick certainly doesn’t make her any less dead now.
This has helped me ngl with my auto immune illness. I thank you very much
Yay! I am happy you got the right diagnosis, finally. I had my first dislocation at three years of age. I had been diagnosed with everything from juvenile arthritis, asthma, spastic colon, tension arrhythmia, degenerative arthritis, and lupis. I finally got a nonspecific connective tissue disorder diagnosis when I was 30, and my EDS diagnosis when I was 42, which was taken away from me at 55 because I can’t afford the new skin biopsy test, but maybe I’ll be able to after my son is out of college. ��
My late uncle was misdiagnosed with the flu at age nine. A few months later he was diagnosed with leukemia. He died at age twelve. My other uncle (teenaged at the time) was told he was lazy and faking it, that he just needed to exercise more. He was then later diagnosed with CFS/ME. My mother was told she was just eating too much, that it was “just hormones”, that she was also lazy and faking it. She was then diagnosed with PCOS. I am currently in limbo of diagnosis myself and I am sick and tired of being passed over to psych and doctors ignoring my GI, cognitive function, and tendon issues. For being paid to listen and observe, medical professionals sure are bad at it.
I have hEDS and share many of your symptoms Inappropriate Sinus Tachycardia, MCAS. If I hear one more person say “your in pain but you’re 30, so we don’t feel comfortable treating your pain”. I also had multiple doctors say what they said to you and I wasn’t diagnosed until 28.
I was having trouble the moment I hit puberty. Pain in my knees, no energy, lost my ability to run. Doctor’s settled in growing pains. 13 years later: I have a genetic hiccup in my red blood cells that means they don’t store Iron or create enough of it. ‘Growing pains’ aren’t a real thing, it’s now known that teens can have a tendency for iron deficiencies. I happen to have a genetic problem though, which was tipped wildly out of control by the onset of puberty in tandem with the things puberty does. Two iron supplements a day for the next thirty yearsbut now I have a normal amount of energy and can do stuff without feeling like i’ve never slept in my life before
I have a question i might sound like a dumbass but how do doctors cut off a limb? Just chop it off or is there like a professional technique?
I was referred to a rheumatologist 3 years ago and still no word. I understand rheumatology are busy because my mum has rheumatoid arthritis but jesus the NHS is being made into a joke:(. I had to fight with my GP to give me a referral because when I asked (even though my sister and mother are diagnosed with hypermobility) she said “Why? There’s no point. They are so busy and sure you are able to work anyway right?” Like, no love I’m not. I do work. When I don’t accidentally pop out my patella when turning, then spend 3 months in a full leg cast because the doctor thinks “there is probably no damage, but let’s just leave it on for an extra month”. Thank you for coming to my Ted talk lol
wait, wait, the finger tricks aren’t normal??? i have SO MANY weird tricks i can do with my joints, i always thought i was just flexible or “double jointed”. it never occurred to me that my flexibility and my joint pain could be caused by the same thing. i know, objectively, that it’s not normal to carry multiple braces to school “just in case” or cling to railings on the stairs because “you never know when a knee or ankle will give out!” but beyond general joint pain (which i chalked up to arthritis didn’t know that could be a symptom of something bigger) i always thought the rest of my symptoms don’t occur often enough to be considered an issue (now realizing that the symptoms being more than one-time things should be enough to be considered an issue). i’ll… definitely have to look into eds. the biggest thing stopping me so far, i think, is that my symptoms aren’t as frequent or severe as other people’s. i have to keep reminding myself that’s it’s possible to have moderate cases of certain things and that that doesn’t make me any less valid than someone with severe symptoms.
thank you so much for making this video, jessica.
Thank you so much for making this video. I’m an adult before being diagnosed with both CF and EDS. Your lovely story telling methods make me feel a lot less weird
Wait… your joints get looser before your period too!? I still am surprised when I find out that something I experience is an actual, recognised THING in EDS. There are just so many variations and symptoms.
he tore his acl mcl pcl llc meniscus abc 123 degf lmnop nbc ncis nsnbc mci mri tf
When you have to introduce yourself with your medical history…��
That is really unfair. Doctors swore on an oath to help. Honestly, doctors like this deserve to lose their license
I feel her with trampolineing. I cant use them because i have oi and ive been invited to partied multiple times that ive had to turn down and say sorry
I haven’t watched many of your videos but listening to you list your symptoms throughout this one I immediately thought “sounds like you should look in to EDS + possibly POTS” since many people with EDS also have POTS and some of your symptoms reminded me of my brothers(he was diagnosed with POTS some years ago). I’m glad you were eventually able to get a proper diagnoses though it’s shitty that it took so long.
My male doctor told me I don’t look sad so I can’t be as despressed as I say I feel… ��
“Painful life lessons packaged in happy ways with some vintage sass”
I have Crohn’s disease. I had symptoms for a year before I was diagnosed and was steadily loosing weight over that time. I was very overweight so it wasn’t a big deal but then I started to have issues like having to use the bathroom 10-20 times a day (Crohns is an autoimmune disorder against your GI system), having accidents (shirting my pants) and even after a spike in what turned out to be a crohn’s flare and loosing 30 POUNDS in a MONTH, my GP thought I was overreacting when asking to see a specialist. She kept telling me to use an anti-diarrhea medicine up to 8 times a day and see if it gets better. Oh, did I mention that when I would use the bathroom I was actually having blood in my stool regularly. By the time I saw the specialist there were times I had gone to the bathroom and there was so much blood I honestly couldn’t tell if there was any stool in there or if it was all blood. I met my gastro and he saved me. My entire colon was so inflamed he said it was either cancer or crohns. Thankfully it wasn’t cancer and I’m happy that I got a diagnosis. I no longer see that GP, I was so close to going into shock because of how long she let my symptoms go. I was deteriorating and she shrugged it off mostly because I was loosing weight. It’s relieving to be properly diagnosed and having a good doctor who takes you seriously.
I just tore my meniscus and I landed in a similar way to how he landed I’m so thankful that this did not occur. (Btw the enemy team was down by like 30 and they fouled me on the play)
Kevin ware was pretty scary for sure I don’t even know if he’s still playing or not
you are so loved. please give your heart to Christ. you are so beautiful and loved and worthy, no matter no matter no matter who you are. love you all. bask in God’s Goodness. i’m saying all this out of love, not hate or critique or criticism. you are enough. you are beautiful. you are so deeply loved.
im 19, soon to be 20 and my father committed suicide when i was 9 and i JUST got diagnosed with ptsd. ive been to multiple therapists and doctors, clearly showing symptoms of ptsd but it took 10 years to finally be heard.
This hits really close to home. My boyfriend almost died because of a misdiagnosis. His doctor thought he wasn’t being able to breathe because of heart problems, and even made him do a stoichiometric test with only one functional lung. He spent one whole month with a popped lung because of that fucking bastard. He went through two surgeries and had an intense recovery because this shit ass doctor who isn’t familiar with a stethoscope made us waste time and almost killed my dear love. It brings tears of rage to my eyes remembering this.
What about the one with the dude who litterly broke his leg because the bone snapped out of his leg its really graphics and that’s why I don’t have a lot of information
My best friend has EDS and it is absolutely INFURIATING how typical it is for folks with EDS to go years without a diagnosis and to be so utterly neglected. They recently got Smart Crutches, which were designed with with EDS in mind, and they’ve been so so so happy with them.
Um what about the college basket ball players shin bone came out of his leg
You should do a video on Kevin Ware’s leg injury. I don’t know what became of the kid after his tenure in the NCAA, but I’ll never forget how gruesome that injury was when he landed on the court in the NCAA Tournament.